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"PLEASE READ: I have had severe, crippling Cluster's for 20 years plus now. Always behind the left eye.
I've been to countless doctors and have tried countless remedies and drugs, with only temporary relief, or in most cases,
no relief at all.
I have had ALL tests imaginable, and I'm perfectly normal according to doctors. I've spent alot of money on a
handful of witch-doctor-type remedies because I was so desperate, that I would try anything. I have even written a song
entitled "Cluster" with help from the band that I'm in, which I will post as soon as it's mastered.
If I have any words of advice that could only help and not hurt a thing to search for information about hypoglycemia and clusters.
I tried cutting most sugars from my diet, and in approx 2-3 weeks, I am now totally free of my cycle!!! I am also no longer in need of my medication (Relpax) whatsoever!! I had no idea that I consumed that much sugar! I thought I was normal by having a few sodas each day and a dessert after each meal, etc. However, after researching the symptoms of hypoglycemia, I was shocked to find that I had 90% of the symptoms of a hypoglycemic.
I really think that they are onto something, and like I said, other than a little discomfort from missing a dessert or 2, or the unpleasant taste of a few diet sodas, what's it gonna hurt to try it for a couple of weeks. My belief is that my body took a couple of weeks to get adjusted to the new sugar levels, and now they have leveled off and returned to normal. I believe that all I have to do is try to continue to keep my sugar intake as low as possible (without going crazy cuz it's hard when you love sweets as much as I do!) and I will be cluster-free.
This is after 20 years of suffering intense daily pain, with only a couple of breaks in between cycles. It impressed me so much, I had to write you. Maybe you can post this at your site as well. Peace and good luck."
Last modified: 2003
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